FOR PARENTS / CARERS

Welcome to the parent and carers information page of the South East Thames Paediatric Epilepsy Group (SETPEG). By following the links below we hope you will be able to find information about a wide range of topics related to the different types of epilepsy, including care, first aid, treatments and education. 

You are welcome to browse the other pages within this site but most of the other information is designed for neurologists, paediatricians, specialist nurses and other professionals working with children and young people with epilepsy.

Please note; It is with regret that SETPEG cannot offer advice to individual queries about a child’s treatment or management. We recommend you contact your child’s epilepsy team or GP in the first instance. If you need more immediate advice contact NHS direct www.nhsdirect.nhs.uk or by dialling 111 or 0845 4647 from some areas.

 

SETPEG VIRTUAL INFORMATION PACK

Information about Epilepsy
by the South East Thames Paediatric Epilepsy Group

MEDICINES FOR CHILDREN

Medication information sheets to download about antiepileptic and other medications.

 

EPILEPSY ACTION

A community of people committed to a better life for everyone affected by epilepsy.

EPILEPSY SOCIETY

A comprehensive resource of information regarding Epilepsy.

YOUNG EPILEPSY

A national charity supporting children and young people with epilepsy.

MATTHEWS FRIENDS

A UK charity specialising in medical Ketogenic Diet therapies.

VNS THERAPY

Information about Vagus Nerve Stimulation therapy

DRAVET SYNDROME UK

An independent UK charity dedicated to improving the lives of children and adults living with Dravet Syndrome.

 

NICE

National Institute for Health and Clinical Excellence: Guidelines on Epilepsy

BRITISH PAEDIATRIC NEUROLOGY ASSOCIATION

The professional organisation for doctors who specialise in the care of children with neurological disorders.

INTERNATIONAL LEAGUE AGAINST EPILEPSY

The world’s preeminent association of epilepsy health professionals.