FOR PARENTS / CARERS: USEFUL LINKS
INFORMATION FOR CHILDREN AND YOUNG PEOPLE
Resources for parents and carers
Dravet Syndrome UK – an independent UK charity dedicated to improving the lives of children and adults living with Dravet Syndrome.
Epilepsy 12 – A national three-year audit to help improve patient outcomes and the quality of care and service provided.
Epilepsy Action – A community of people committed to a better life for everyone affected by epilepsy.
Epilepsy Society – a comprehensive resource of information regarding Epilepsy.
Genetics and Epilepsy – this link above gives nice explanation of the role of genetics in epilepsy
ILAE (International League Against Epilepsy) – the world’s preeminent association of epilepsy health professionals.
Joint Epilepsy Council – an umbrella charity providing the representative voice working for the benefit of people affected by epilepsy.
Matthews Friends – a UK charity specialising in medical Ketogenic Diet therapies.
Medicines for Children – medication information sheets to download
NICE (National Institute for Health and Clinical Excellence)
Young Epilepsy – a national charity supporting children and young people with epilepsy.
VNS Therapy – information about Vagus Nerve Stimulation therapy