FOR PARENTS / CARERS: USEFUL LINKS

INFORMATION FOR CHILDREN AND YOUNG PEOPLE

Resources for parents and carers


  • BPNA (British Paediatric Neurology Association) – the professional organisation for doctors who specialise in the care of children with neurological disorders.

  • Dravet Syndrome UK – an independent UK charity dedicated to improving the lives of children and adults living with Dravet Syndrome.

  • Epilepsy 12 – A national three-year audit to help improve patient outcomes and the quality of care and service provided.

  • Epilepsy Action – A community of people committed to a better life for everyone affected by epilepsy.

  • Epilepsy Society – a comprehensive resource of information regarding Epilepsy.

  • Genetics and Epilepsy – this link above gives nice explanation of the role of genetics in epilepsy

  • ILAE (International League Against Epilepsy) – the world’s preeminent association of epilepsy health professionals.

  • Joint Epilepsy Council – an umbrella charity providing the representative voice working for the benefit of people affected by epilepsy.

  • Matthews Friends – a UK charity specialising in medical Ketogenic Diet therapies.

  • Medicines for Children – medication information sheets to download

  • NICE (National Institute for Health and Clinical Excellence)

  • Young Epilepsy – a national charity supporting children and young people with epilepsy.

  • VNS Therapy – information about Vagus Nerve Stimulation therapy

 

01689864842

Dr Dennis Grigoratos, Level 3 South Wing, Princess Royal University Hospital, Farnborough Common, Orpington BR6 8ND

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