FOR PROFESSIONALS:
USEFUL RESOURCES

GENETIC TESTING INFORMATION:

• WGS Testing - Proband Test Order Form

• WGS Testing - Parental Blood Form

• WGS Testing - Record of Discussion Form

• HPO Term Directory

• KCH - WGS Guideline

• SETPEG Genetic Testing Guidelines (Obsolete)

• Guy's Genetics Specimen Form

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EPILEPSY SURGERY (CESS) PATHWAY:

• Clinical Pathway Document

• CESS Referral Proforma

• A guide for Paediatricians: Children’s Epilepsy Surgery Service

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CBD & EPILEPSY:

• BPNA Guidance on the use of cannabis‐based products in children with epilepsy

 

SODIUM VALPROATE & TOPIRAMATE PREGNANCY FORMS:

• Implementation of MHRA regulation for prescribing of sodium valproate (Evelina Guideline 2024)

• Prescribing valproate to female patients under 18 years of age (BPNA)

• Guidance Document on Valproate Use in Women and Girls of Childbearing Years

• Valproate Annual Risk Acknowledgement Form (female)

• Valproate Annual Risk Acknowledgement Form (male)

• Topiramate Annual Risk Acknowledgement Form

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SUDEP:

• SUDEP Safety Checklist

• SUDEP Safety Checklist References

 

​​KETOGENIC DIET INFORMATION:

•  

• Ketogenic diet medicines info

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CHECC - Child and Young Person Epilepsy Concerns Checklist

• CYP Updated Version

• Parent/Carer Updated Version

• School/Nursery Updated Version

• BACD Newsletter

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BEST PRACTICE TARIFF:

• Best Practice Tariff Guide 2021

• Best Practice Tariff Prices 2021

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OTHER USEFUL RESOURCES:​

• Epilepsy Information Checklist 2010

• Epilepsy Record Sheet

• Epilepsy First Review Sheet

• Medication Change Chart

• Seizure Record Chart

• St George's Transition Proforma

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